Caden is in his own room in the MUSC children’s hospital. Well, his own shared room. This placed is packed. Caden had to wait for several extra hours in the recovery room until they discharged someone to free up a bed. This is Caden’s first stay at MUSC where he did not get put in a unit for cardiac babies. We expect to be out of here by late morning. Caden was back on partial tube feedings before he even left the recovery room this morning. He was back up to a full tube feed by the afternoon and they pulled his IV.
I have a picture of Caden’s esophagus that was taken by the doctor today during the procedure. I don’t have my picture scanner here at the hospital or I would share it with you. The doctor said that she knew that Caden’s muscle at the top of his esophagus would be big, but she said a better word to describe his muscle is gargantuan. She injected botox into it in two separate places. She expects the botox to take effect in 48 to 72 hours.
In other big news today, Sherry got our blood test results back from the genetics screening. This was to check to see if Sherry or I gave Caden DiGeorge Syndrome. Neither of us has DiGeorge and the geneticist said there is no reason to test anyone else in the family. Caden seems to have got DiGeorge the same way over 90% of DiGeorge kids get it which is an anomaly during the first trimester that causes the micro deletion on the 22nd chromosome.
Thank you for praying for Caden today. God has answered and protected this little boy as you have asked. To God be the glory for the work done here today. Caden came through this procedure without any complications. Please continue to pray that this botox treatment will take affect in just a perfect way. We want to put away that suction machine this weekend for good.
Caden will get another MBS (Modified Barium Swallow) next Wednesday. This will document the new swallowing skills that Caden will gain from this botox and clear Caden to start working with speech and occupational therapy to take food by mouth for the first time ever.
Thanks a bunch for keeping up with Caden’s progress and continuing to pray for him and our family.
Happy nine months to Caden on August 2nd. This picture was taken this evening. As you can see, Caden is in a great mode.