Caden’s Page

The 2005 Lowcountry Heart Walk Saturday, September 24thYou do NOT have to donate to participate in the walk. I encourage you to register for the walk if you want to come walk with our family this Saturday. You could qualify for a t-shirt and other great prizes if you do decide to raise funds. You […]

Caden started the week off pretty rough. He has picked up a cold that landed him at the pediatrician’s office this week. They took the conservative approach and prescribed some antibiotics for him. Caden has been very fussy and having a hard time sleeping. Caden saw his new speech therapist today at MUSC. I have […]

We did get call from the doctor on Friday telling us that the results are back on Caden’s immunology blood tests. He did not give specific numbers but did say that Caden was headed in the right direction. His T-Cell counts have increased which means his immune system is maturing without any intervention.

Caden had a MBS (Modified Barium Swallow) study done at MUSC on Friday afternoon. This was to test his swallowing functionality after the second botox treatment. This MBS showed no improved swallowing functionality relative tot he last MBS which was doe one week after th first botox treatment. While the recent botox treatment was a […]

Caden goes in for a modified barium swallow (MBS) study this afternoon to see how well his recent botox treatment worked. We will let you know how it went later this weekend.

Caden is home and napping in his own bed after a good day at the hospital. Caden had no ill affects of today’s procedure. We won’t know how effective this botox treatment is for at least a couple of days when it takes affect. It was a long day. We arrived on time, but did […]

Caden will go in at 8:30am on Friday for a second treatment of botox to his upper esophagus muscle. This procedure will be performed as out-patient at MUSC Rutledge Tower. He will also have blood drawn for immunology ad endocrinology tests while he is sedated. Please take a moment to pray for our little boy […]