Caden was taken off the respirator at about 10am this morning (Tues. 9/23) and he has had one chest drain tube removed. He has been awake some today and has been responding to Sherry and me by nodding his head and signing with the one hand that does not have a line in it. He has an arterial line in his right hand and a central line in the right side of his neck. These lines are expected to be removed tomorrow according to the latest word from the cardiology team. Oh…they took out the foley/catheter and are weaning off of all IV meds. They are starting the first g-tube feeding tonight, but it will be a partial feeding.
I apologize for taking so long to update today. I have ended up in several detailed conversations with other families who are dealing with some very tough situations. One family is basically saying their goodbyes to their 15 month old and another family is struggling with botched test results that will take up to two weeks repeat. We are currently out for the evening shift change of the nursing staff. Caden is doing very well this evening.
My mom brought Riley and Josiah down to the hospital today so we could visit with them in the waiting room. Riley requested to see Caden, but was not allowed into the PCICU. Riley cried because he could not see Caden and then Caden cried when we told him that his brother wanted to see him but would not be allowed until we go to a room on the step-down unit (7C).
Please pray for me to have favor with the PCICU staff as I stay over night. They are not fully sedating Caden any longer and we do not want to leave him without one of us near by. He will likely be moved to 7C sometime tomorrow.