The before xrays on the left were taken on August 2, 2010. The after xrays on the right were taken on October 3, 2010 while Caden was still in the hospital recovering from surgery. VEPTR Rods were surgically placed in Caden’s back on September 28, 2010 at the Medical University of South Carolina. The primary […]
Archive for the '22q11.2' Category
Sunday, October 17th, 2010Caden’s day was not so smooth, but his night has been great so far. He did have a fever again, but the doctors have finally agreed to add an antibiotic to treat sinus and ear infections as well as pneumonia. They are now giving Caden Rocephin via IV. There is no diagnosis of pneumonia, but […]
Folks who have been to our house lately have met Caden’s Skunk. It is a stuffed animal he chose from the gift shop during a trip to the SC Aquarium. The skunk actually went to the operating room with Caden today. The skunk even got his own ID bracelet. It was very cute. Now that […]
Tuesday is the big day. Caden is scheduled for another major surgery this week. He will be getting VEPTR rods placed in his back on both sides of his spine. These rods will be attached to the rear of his rib cage at the top and to his pelvis on the bottom end of the […]
We have received some inquiries on the results of the visit to Cincinnati Children’s Hospital. We did visit Cincinnati Children’s as planned during our recent vacation. We saw two clinics. We didn’t really hear anything new in terms of ideas to get Caden to swallow from the first clinic (ENT). Caden’s local ENT doc had […]
Caden has been referred to the Aerodigestive and Sleep Center at Cincinnati Children’s Hospital. Caden’s local ENT (Otolaryngology / Head and Neck Surgery) specialist has reached the end of his tool belt in terms of treating the swallowing challenges that Caden has battled since birth. Caden will be six years old in just a few […]
The lesson tonight in our Growing Kids God’s Way class was titled “Rejection: Man’s Greatest Fear”. The lesson Gary Ezzo delivered in the video ended with a point that could not have been more divinely placed in our lives today. “”Take inventory.” While Mr. Ezzo gave this suggestion in the context of the fear of […]
Today was the big day. Caden had a surgery called a cricopharyngeal myotomy. This surgery was preformed to divide (cut) the muscle that causes the UES (Upper Esophageal Sphincter) to squeeze closed. In Caden’s case the muscle has never relaxed enough to allow for him to pass food, drink, or even his own saliva into […]
Snow tubing was the plan for the day. We were working on a trip to the western North Carolina mountains this weekend. I promised Riley some snow this winter and I was planning to deliver on my promise this weekend. Our day went horrible yesterday when I was woke up at about 4am with a […]