Caden is scheduled for an MRI of his back and head on Thursday January 8th. This will require sedation and will let the orthopedic surgeons know if Caden’s spinal cord is healthy enough to undergo surgery for the scoliosis if required. Please keep Caden in your prayers this week as he is sedated for this […]
Archive for the '22q11.2' Category
Monday, January 5th, 2009Caden went in for a post op appointment today just nine days after open-heart surgery. He was given two thumbs up by the cardiologist. They looked him over pretty carefully including performing an echo cardiogram. The echo looked great and all of Caden’s numbers O2 sats, blood pressure, and heart rate were all good. The […]
Caden continues to do great. His activity level continues to increase and as well as the frequency of smiles. The following picture was captured today while Caden was entertaining himself with a little musical instrument. The above picture does show some indications of one of Caden’s largest problems which is a very itchy rash that […]
Caden arrived home at approximately 1:00pm this afternoon (Friday 9/26). PRAISE GOD! So how does a kid go from the picture on the left (taken Monday 9/22) just after leaving the operating room where he received a major open heart surgery to the picture on the right (taken Friday 9/26) in just four days? I […]
Caden is very stable. We just got our 3rd update from the operating room. The surgeon is moving forward with the Ross Procedureto replace the aortic valve. This greatly lengthens the time in the operating room to approximately 12 hours. That said we should not expect Caden out of surgery until 6pm or later tonight. […]
Caden is very stable. They are just now putting Caden on heart lung bypass at a few minutes after 9am 9/22/08. The nurse practitioner said that updates will be coming about once per hour until they are finished with surgery. We have been issued a pager that allows them to update us directly from the […]
We have been instructed to have Caden at the surgery check-in area of the main hospital of MUSC at 5:30am on Monday 9/22/08. The surgery will be performed on the 4th floor of the main building of MUSC and Caden will be transferred to the PCICU (pediatric cardiology intensive care unit) on the same floor. […]
We got the call this morning that Caden is on the schedule for open heart surgery on Monday, September 22. This will be an aortic valve repair/replacement and pacemaker removal. We will be at MUSC pretty much all day tomorrow 9/19 for pre-op work up. Caden will probably not be admitted until just before surgery […]
We are still here and may be here up into the weekend based on events of today. Sherry had a bunch of doctors come by today. We finally got to see some familiar faces with Caden’s ENT doctor, general surgeon, and endocrinologist stopping by. Rough Night Last night (Monday night) was very rough for Caden. […]