Caden’s Page

Caden is being admitted to MUSC after the ER visit mentioned in the previous post. The fever he had when Sherry left for the hospital earlier today took four hours to break. Sherry and the ER doctor hit it off really well. The doctor was very straight forward and transparent about his line of thinking […]

We will see Caden’s cardiologist on the 20th of August. We have many outstanding questions and the list of procedures that Caden needs is increasing. Sherry and I felt that it might be best to just let you read the emails that passed between me and the cardiologist in the past two weeks. That should […]

I know I pretty much left everyone hanging after the trip to Philadelphia. Leaving everyone hanging was not my intent but rather a result of some unknowns and my state of mind in reference to all that is going on. The end result after CHOP was that the orthopedic surgeon up there agrees with the […]

We had a pretty good night. As I said yesterday we did not get into the Ronald McDonald House. They were full, but helped make a reservation that was MUCH cheaper than anything I could find on my own within a $10 cab ride distance of the hospital. As you can see from the picture […]

We spent about an hour and a half in the genetics cetnter. It seems we have done pretty well at getting Caden to all the specialists that they would normally recommend. Their observations of Caden left them impressed with his growth and cognative development. Their primary concern, once the heart and scoliosis issues are ironed […]

We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]

I actually started this post a few days after Easter. It was going to be sort of an update after the hospital discharge. Other priorities got in the way and here I am finally posting weeks later. The delay actually caused a titled change that was originally focusing on the sixteen shots Caden go in […]

I took a few minutes last night to catch up on our little friend Callie from Atlanta. She has been at Stanford since last July where she has endured numerous surgeries and spent a majority of her time in the ICU. This week Callie was moved back to an Atlanta Children’s Hospital via a care […]

It has been a couple of busy weeks for us as I am sure it has for you. I wanted to take a moment to share the results of the Modified Barium Swallow (MBS) done two weeks ago today. The short version of the story is to say that the MBS showed no signs of […]