The UES dilation went of without a hitch. We won’t know the extent of swallowing functionality improvement until Monday. Caden is doing fine and playing here at home as normal this evening. Thank you for keeping this little guy in your prayers.
Archive for the '22q11.2' Category
Friday, December 14th, 2007It looks like we are finally on for an upper esophagus sphincter (UES) dilation. Caden is scheduled to report to the main MUSC operating room area at 9:10 am Friday morning. The procedure is scheduled to begin at approximately 11AM tomorrow. This is really an outpatient procedure, but the cardiologist want Caden in the main […]
Answered Prayer Caden had his six month cardiology check up today. The appointment came complete with an EKG and an echo cardiogram. The results of the visit seemed to surprise the cardiologist and it lifted a huge weight off of our shoulders. Sherry and I both had trouble sleeping last night. The past few weeks […]
Sherry was just about to strap Josiah in the carrier and head to MUSC for the pre-op visit with Caden when ENT called me at work to say the UES dilation procedure had been postponed until after cardiology could see Caden. We are not certain exactly why, but cardiology has put a halt to the […]
This is Caden’s Page and not Josiah’s page just in case you were wondering. Much fuss has been given to Josiah in recent weeks, but business is picking up for Caden. During the month of October we will see more specialist in one month than Caden has seen in over a year. This week we […]
The Labor Day weekend has not been fun in our house especially for Sherry. She has been fighting a pretty bad case of mastitis for the past couple of days. Her fever reached at least 103 at one point earlier today. She is still nursing Josiah while trying to work through the chills and pain. […]
I got an email today from a blogger friend reminding me that I had not posted about how Caden’s appointments went last week. The short version of the story is that the MBS is still showing no signs of swallowing functionality. The feeding via g-tube is still in play for all of Caden’s nutrition and […]
First off let me say that everyone is doing pretty good. I have gone back to work this week and Grandma is in town helping Sherry out with the boys. Josiah is growing like a weed. More on that in a minute. Caden has a big day on Tuesday. He will get his first MBS […]
The morning went along for a while with a continuation of the same air from last night. More disappointment and frustration with the folks caring for Josiah. It didn’t take long for things to take a turn for the better. Prayer in action, I am certain of it. His pediatrician even prayed with us. The […]