We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]
Archive for the 'ENT' Category
Friday, May 2nd, 2008There has not been any excitement in a while and we are not complaining about that fact either. However, today brought a little excitement to us with a short visit to MUSC. I must start off by saying that this was the smoothest ER visiting at MUSC ever. Â And we have had our share […]
It has been a couple of busy weeks for us as I am sure it has for you. I wanted to take a moment to share the results of the Modified Barium Swallow (MBS) done two weeks ago today. The short version of the story is to say that the MBS showed no signs of […]
The UES dilation went of without a hitch. We won’t know the extent of swallowing functionality improvement until Monday. Caden is doing fine and playing here at home as normal this evening. Thank you for keeping this little guy in your prayers.
It looks like we are finally on for an upper esophagus sphincter (UES) dilation. Caden is scheduled to report to the main MUSC operating room area at 9:10 am Friday morning. The procedure is scheduled to begin at approximately 11AM tomorrow. This is really an outpatient procedure, but the cardiologist want Caden in the main […]
The ENT procedure that was planned for Tuesday has been rescheduled for Friday, December 14th. The MBS will be scheduled for the following Monday the 17th of December. The operating room was booked up for Tuesday of this week and we were unable to get Caden on the schedule on such short notice after the […]
Happy Birthday Caden Today Caden turns three years old. By the grace of God, Caden lives up to the meaning of his name. Caden – fighter Gabriel – God is my strength Caden and our family continue to fight fueled by strength given from God. This week has shown us some great fun times mixed […]
Answered Prayer Caden had his six month cardiology check up today. The appointment came complete with an EKG and an echo cardiogram. The results of the visit seemed to surprise the cardiologist and it lifted a huge weight off of our shoulders. Sherry and I both had trouble sleeping last night. The past few weeks […]
Sherry was just about to strap Josiah in the carrier and head to MUSC for the pre-op visit with Caden when ENT called me at work to say the UES dilation procedure had been postponed until after cardiology could see Caden. We are not certain exactly why, but cardiology has put a halt to the […]