Caden’s Page

Caden is doing really good today.  He is still requiring some pain management and has had a little difficulty with his tube feeds.  Nothing surprising at all.  Please pray for his continued healing, rest, and overall comfort. The Problem MUSC Children’s Hospital is overloaded with kids right now so we have been told to expect […]

I tried to get back into the PCICU after shift and was DENIED access.  Caden’s nurse sent a messenger out to tell me that they were removing lines.  I am assuming that means both the arterial and central lines mentioned yesterday.  This will give Caden great joy.  He has been asking to be held since […]

Caden was taken off the respirator at about 10am this morning (Tues. 9/23) and he has had one chest drain tube removed.  He has been awake some today and has been responding to Sherry and me by nodding his head and signing with the one hand that does not have a line in it.  He […]

I talked to Caden’s nurse at about 5:30 this morning and Caden had a good night.  There were a few spells of Caden trying to wake up, but nothing too exciting.  “Nothing too exciting” is what you want in the first 24 hours after a day like yesterday.  The nurse full expects Caden to be […]

Caden is stable and we are all about to be sleeping.  Caden’s night shift team is very impressive and super sensitive to our requests to be notified immediately if there is any chance that Caden will be allowed to wake up before morning shift change.  Caden is in an isolation room that will allow for […]

We will get to see Caden at about 5:15.  He is in the PCICU recovering.  The surgeon talked with Sherry and I and told us things went well.  The bleeding is not a huge surprise, but they will want to monitor it to make sure it stops.  They have chest drain tubes in to relieve […]

We have been told that Caden has been off the heart lung bypass for enarly two hours, but was experiencing some bleeding.  They have been delaying closing Caden’s chest until bleeding was under control. Praise God!!! While typing this post we got a page that Caden is in the PCICU and the surgeon will be out to talk with us […]

Caden is very stable.  We just got our 3rd update from the operating room.  The surgeon is moving forward with the Ross Procedureto replace the aortic valve.  This greatly lengthens the time in the operating room to approximately 12 hours.  That said we should not expect Caden out of surgery until 6pm or later tonight.  […]

Caden is very stable.  They are just now putting Caden on heart lung bypass at a few minutes after 9am 9/22/08.  The nurse practitioner said that updates will be coming about once per hour until they are finished with surgery.  We have been issued a pager that allows them to update us directly from the […]