Caden is very stable. We just got our 3rd update from the operating room. The surgeon is moving forward with the Ross Procedureto replace the aortic valve. This greatly lengthens the time in the operating room to approximately 12 hours. That said we should not expect Caden out of surgery until 6pm or later tonight. […]
Archive for the 'Prayer Answered' Category
Monday, September 22nd, 2008Caden is very stable. They are just now putting Caden on heart lung bypass at a few minutes after 9am 9/22/08. The nurse practitioner said that updates will be coming about once per hour until they are finished with surgery. We have been issued a pager that allows them to update us directly from the […]
Caden was discharged this evening. The surgery was cancelled for a couple of reasons. The first reason is that all surgeries at MUSC are cancelled for Friday 9/5/2008 due to potential tropical storm conditions along the SC coast. The second reason Caden will not have this ENT and general peds surgery is that the cardiologist […]
We will see Caden’s cardiologist on the 20th of August. We have many outstanding questions and the list of procedures that Caden needs is increasing. Sherry and I felt that it might be best to just let you read the emails that passed between me and the cardiologist in the past two weeks. That should […]
We had a visit with the orthopedic surgeon today and we completed a 24 Halter monitor. Today is all about good news. Cardiology – Halter Monitor The Halter monitor was completed this morning. The really good news about the Halter monitor was that Caden did not have a single retching spell or a fever during […]
Sherry just reminded me that I have not posted to let everyone know we made it home safe. The ENT visit ended with the above picture. This is what a 3 1/2 year old says after 36 hours of non-stop travel and doctor’s appointments 658 miles away from home. “Can we go now? I have […]
The flight went great. Caden slept most of the way and showed no sign of discomfort. Praise God! Caden is currently standing at our window as we wait to exit the plane. He is loving the other airplanes he sees taking off. We will update again later.
It has been a busy week preparing for the trip to CHOP. Caden is almost as excited as me. He will get to go in the green car with Daddy on Monday morning. That in itself creates a smile that you can’t pry off with a crowbar. Then Caden will get to board a plane […]
We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]