Caden’s Page

Today we see Cardiology.  Please keep us in your prayers as previously requested.  The last post details what all we will be talking about and why. I have been playing with our new digital camera.  It is a low end point a shoot that we got to replace the one I broke on Josiah’s birthday.  […]

We will see Caden’s cardiologist on the 20th of August. We have many outstanding questions and the list of procedures that Caden needs is increasing. Sherry and I felt that it might be best to just let you read the emails that passed between me and the cardiologist in the past two weeks. That should […]

I know I pretty much left everyone hanging after the trip to Philadelphia. Leaving everyone hanging was not my intent but rather a result of some unknowns and my state of mind in reference to all that is going on. The end result after CHOP was that the orthopedic surgeon up there agrees with the […]

It has been a busy week preparing for the trip to CHOP. Caden is almost as excited as me. He will get to go in the green car with Daddy on Monday morning. That in itself creates a smile that you can’t pry off with a crowbar. Then Caden will get to board a plane […]

We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]

The recommendation made on Wednesday was to proceed with the replacement of Caden’s aortic valve.  The cardiologist is talking with the cardiothorasic surgeon to determine if this is a go or not.  I believe Sherry and I both or more at peace with this recommendation than just about anything we have faced in recent years.   […]

I actually started this post a few days after Easter. It was going to be sort of an update after the hospital discharge. Other priorities got in the way and here I am finally posting weeks later. The delay actually caused a titled change that was originally focusing on the sixteen shots Caden go in […]

It looks like we are finally on for an upper esophagus sphincter (UES) dilation. Caden is scheduled to report to the main MUSC operating room area at 9:10 am Friday morning. The procedure is scheduled to begin at approximately 11AM tomorrow. This is really an outpatient procedure, but the cardiologist want Caden in the main […]

Bob? Larry? No, That is Caden and Riley. Pretty cute, huh? Thanks to Grandma and Grandpa for the awesome shirts. And the white portion glows in the dark. I thought I would share a little fun before getting to the heavy stuff. All in all, Caden and the rest of the gang here are doing […]