Caden’s Page

I know I pretty much left everyone hanging after the trip to Philadelphia. Leaving everyone hanging was not my intent but rather a result of some unknowns and my state of mind in reference to all that is going on. The end result after CHOP was that the orthopedic surgeon up there agrees with the […]

We had a pretty good night. As I said yesterday we did not get into the Ronald McDonald House. They were full, but helped make a reservation that was MUCH cheaper than anything I could find on my own within a $10 cab ride distance of the hospital. As you can see from the picture […]

We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]

The recommendation made on Wednesday was to proceed with the replacement of Caden’s aortic valve.  The cardiologist is talking with the cardiothorasic surgeon to determine if this is a go or not.  I believe Sherry and I both or more at peace with this recommendation than just about anything we have faced in recent years.   […]

I actually started this post a few days after Easter. It was going to be sort of an update after the hospital discharge. Other priorities got in the way and here I am finally posting weeks later. The delay actually caused a titled change that was originally focusing on the sixteen shots Caden go in […]

Answered Prayer Caden had his six month cardiology check up today. The appointment came complete with an EKG and an echo cardiogram. The results of the visit seemed to surprise the cardiologist and it lifted a huge weight off of our shoulders. Sherry and I both had trouble sleeping last night. The past few weeks […]

One of Caden’s big appointments for the month is behind us. The results were mixed from my perspective. The good news is that we misunderstood the severity of Caden’s diagnosis last year. It seems that the severity of the curvature was less than we had thought. The bad news is that the curvature has progressed […]

This is Caden’s Page and not Josiah’s page just in case you were wondering. Much fuss has been given to Josiah in recent weeks, but business is picking up for Caden. During the month of October we will see more specialist in one month than Caden has seen in over a year. This week we […]