Caden’s Page

Praise God! The day has come. Our father in heaven has once again showered us with his blessings. I told you that the subject line would read “I Told You So” and it does as I wrote about in my July 7th posting titled “God is Great”. The healing has been delivered. Caden has passed […]

Caden got home in record time. He was home well before noon on Thursday. I am sorry I missed doing and update last night due to plain old exhaustion on my part. I will keep you posted as things progress with Caden’s swallowing. DrakesAmy has been transferred to MUSC. Her water broke last night. She […]

Caden is in his own room in the MUSC children’s hospital. Well, his own shared room. This placed is packed. Caden had to wait for several extra hours in the recovery room until they discharged someone to free up a bed. This is Caden’s first stay at MUSC where he did not get put in […]

Caden is doing great! Off breating machine. No complications. More later. Hank

We were notified late this afternoon that Caden is the first case tomorrow morning. We have to be at MUSC at 6am. They will begin with him around 7am and the botox procedure should take approximately two hours. I will try to get a posting up when he is in his room and settled in. […]

It appears that Caden’s g-tube was malfunctioning and causing him some discomfort. I got home today and Sherry asked me to look at it because it just did not look right. Per the instruction manual I tried deflating the balloon that holds the tube in place. This would tell me if the balloon had the […]

Caden may have caught the bug that has been going around our house. He has been fussy, congested, and running a low-grade fever. We are keeping an eye on him and will keep you posted. We pray that the fever goes away quickly so it does not impact the botox treatment on Wednesday. The botox […]

Caden Caden has been really picking up on his interactions with everyone around him. His personality is starting to show and he is such a joy to interact with. Caden rolled over from his back to his belly twice on Saturday afternoon. He is becoming more mobile by rolling back and forth while pushing himself […]

It has been a long road with the Medicaid Waiver application. We are not exactly sure whether we have been approved for the Medicaid Waiver, but we were contacted by CLTC (Community Long Term Care) on Friday. The lady who called said that we have been funded for 35 hours per week of in-home nursing […]